2 Comments

I "lost" my hair completely twice since my diagnosis - once with the "Red Devil" and a second time four years later while taking "Halavan". Both were tragic experiences for many reasons. Perhaps the biggest for me was I was no longer anonymous in public settings and places. My bald head was glaring evidence that I had "broken from the herd". It felt all eyes were on me anytime when attention was the last thing I was seeking. Wearing scarves did little to disguise or feminize the experience. I like how you refer to the process as a relationship with a "long distance lover". For people who have never experienced what it is like to have your hair slide from your head, in big, tangled clumps, it is hard to capture the feeling "just right".

Expand full comment

When your love returns, I’ll fly out to give you an up-do with entirely too many Bobby pins. Xoxo

Expand full comment